About
We are the UK’s national charity for people affected by epidermolysis bullosa (EB). We support more than 4,000 members across the UK, including over 2,000 people living with EB. Each year, more than 700 members use our support services. We are here for people with inherited EB, their families and carers, as well as healthcare professionals and researchers. Alongside our support work, we fund and drive vital medical research to improve lives.
We also provide community support services for people living with acquired EB, known as epidermolysis bullosa acquisita (EBA).
The charity was established in 1978 by Phyllis Hilton, whose daughter Debra had EB, as the world’s first EB patient support organisation.
DEBRA UK went on to establish DEBRA International, which now runs independently to help establish and support a global network of over 50 DEBRA patient support organisations.
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Volunteer Shop Assistant - Daventry
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Volunteer Shop Assistant - Weston Favell, Northampton
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